Support families who have children diagnosed with the rare and fatal Zellweger Syndrome by holding an annual family get together, providing emotional support groups, bereavement support groups, specialist equipment and supporting research into better treatments. Zellweger Syndrome affects every cell in the body making it an extremely cruel disease that takes everything away from the children, sight, hearing, the ability to walk, talk, bones, heart, liver and lungs...everything.
7 Favourite(s)Charity ID: 3232063
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