The Ehlers-Danlos Support UK

EDS UK was set up in 1987 to support, advise and inform those living with any of the Ehlers-Danlos syndromes (EDS). We aim to help people with EDS live a full, active and positive life. Over 30 years later, we remain the only active UK charity that exclusively represents and supports people with any type of EDS. EDS UK strives to educate the medical community, promote continuity of care, improve accurate diagnosis and provide information on specialist treatment and management of the condition.