Shwachman Diamond Syndrome UK

Shwachman Diamond Syndrome UK

We provide forums for families, patients and medical professionals to connect, we promote access to health and educational services and resources. In addition, we supporting the development of an adult clinic and transition from paediatric to adult care and the research into the pathophysiology of SDS and potential treatments, in particular a dedicated UK Patient Registry.
Charity number: 1164269LINCOLN, Lincolnshire, LN4 1EQ6 Favourite(s)Charity ID: 168782

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